Jeans for genes day. How to help!
Ever heard of Jeans for Genes Day?
Well, it is an annual event helping to raise awareness and funds for children who have been diagnosed with a genetic disorder.
‘Genetic disorder’ sounds rare and unusual but there are lots of them.
Jeans for Genes Day is happening on 23rd September.
The idea is simple – wear jeans, change lives.
Who they help
Genetic disorders bring out BIG numbers!
- There are around 4,000 and 6,000 diagnosed genetic disorders.
- Approximately one in 25 children is affected by a genetic disorder
- This means 30,000 babies and children are newly diagnosed in the UK each year.
We know of some of these disabling conditions like cystic fibrosis, brittle bone disease, sickle cell anemia and Huntington’s but there are lots more. Many have dreadful effects on sight, hearing, and growth and can require specialist care and equipment, none of which comes cheaply.
One condition is caused by exposure to ultraviolet light, both natural and artificial.
Just after his first birthday, Eddison was diagnosed with xeroderma pigmentosum (XP), a genetic disorder that prevents skin from repairing itself after it is exposed to the ultraviolet radiation found in daylight and many sources of artificial light. Children with XP are 10,000 times more likely than others to develop skin cancer and so the only safe way affected children can venture outside is when they wear specialist clothing
The money raised on Jeans for Genes Day will provide protective hats with visors and gloves for children with XP to ensure that they can safely go outside and do the things other children do, like ride a bike or play on a swing.
Read more of the lives of children like Eddison at Our Stories
Where your money goes
Apart from helping with equipment like that mentioned above for Eddison, funds raised also go to
- Supporting the charity Genetic Disorders UKthat helps families affected in any way by genetic disorders
- Working in schools to explain what a genetic disorder is, how it impacts on a child’s life and providing excellent educational resources for teachers to use. They have been divided into the appropriate key stage level.
- The annual grant programme provides support for many of the individual trusts and support groups set up for the individual disorders. Many of them have very exotic name like Albinism, Tay Sachs, Dravet, Noonan and the fabulous Funny Lumps. Funds also help give some respite to young carers who are looking after an adult with a disorder.
How you can help
Obviously, Jeans for Genes Day is all about raising money. Using the iconic jeans as it’s symbol means that it is likely to be available to most people as everyone has a pair of jeans – yes? But what else?
- Get a fundraising pack for your school, office, group. This will provide you with all you need including posters, wraps for the buckets, template letters you can send out.
- Check out the website and see the designer T-shirts available to go with your jeans, many of them modelled by celebrities
- If you are a parent, make sure your nursery, school know about it. Often genetic disorders first appear in early childhood and for some the earlier they are identified the sooner treatment can start.
So, there you have it. You can make a difference! Wear jeans and change a life on 23rd September
Check out the website & get supporting!